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[9003403.] رقم البحث : 9003403 - |
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Guiding Program for Mothers to Improve the Quality of Life of their Children with Congenital Heart Disease / 1Neama Salah EL-Gendy, 2Rabab EL- Sayed Hassan,3Mona Mohammed Hafez4Magda Ahmed Abd EL- Aziz 1M.Sc. Pediatric Nursing, Faculty of Nursing, Tanta University. 2Prof. of Pediatric Nursing, Faculty of Nursing, Mansoura University. 3 Prof. of Pediatric Medicine, Faculty of Medicine, Mansoura University. 4 Ass. Prof.Dr. of Pediatric Nursing, Faculty of Nursing, Mansoura University E-mail of corresponding author: salmamns@yahoo.com |
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Mansoura nursing journal (MNJ) = / vol. 7 No. 2 - 1 Sep 2019 |
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نعمه صلاح عبد العزيز ( neamasalah52@gmail.com - 01115946461 ) - مؤلف رئيسي |
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Rabab EL- Sayed Hassan |
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Magda Ahmed Abd EL |
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Mona Mohammed Hafez |
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Congenital, Guiding program, Mothers, Quality of life. |
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Background: Congenital heart defects are structural issues with the heart display at birth. Congenital heart defects (CHD) is one of the major congenital irregularities among newborns, representing as a major worldwide wellbeing issue. The aim of the study was to design a guiding program for mothers to improve the quality of life of their children with congenital heart disease. Design: A quasi-experimental design was used. Setting: The study was carried out in the Cardiology Department and Outpatient Clinic at Mansoura University Children Hospital (MUCH). Subjects: A convenient sample was included 70 children with congenital heart defects and their accompanying mothers at MUCH, their age ranged from 3 to 12 years, from both sex and confirmed the diagnosis as congenital heart disease, either cyanotic or a cyanotic. Tools: Data were collected using, an interview questionnaire to collect socio-demographic data, for both mothers and their children with CHD.Assessment of mothers’ knowledge and practice about congenital heart defects, and quality of life scale for studied children (QOL scale). The guiding program aims to improve the quality of life of children with congenital heart disease. Results: This study revealed that high statistically significant differences correlation between knowledge score and practice post immediate intervention as well as statistically significant differences correlation between immediately post-program knowledge score and immediately post-program QOL score. Conclusion: The study concluded that mothers’ knowledge, practice, and quality of life of their children congenital heart disease were improved after the implementation of the guiding program either immediately or 3 months later than before its implementation. Recommendation: Organizing training programs for children with CHD in their homes or in public life such as nutrition, sports, and protection from infection. |
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