Search In this Thesis
   Search In this Thesis  
العنوان
Effect of Supportive Care Activities
on Negative Emotional Feelings
of Children with Nephrotic
Syndrome /
المؤلف
Sherif, Doaa Saber Mahran.
هيئة الاعداد
باحث / دعاء صابر مهران شريف
مشرف / إيمان ابراهيم عبد المنعم
مشرف / هيــام رفعـــــت طنطـاوي
تاريخ النشر
2020.
عدد الصفحات
282 P. :
اللغة
الإنجليزية
الدرجة
الدكتوراه
التخصص
طب الأطفال
تاريخ الإجازة
1/1/2020
مكان الإجازة
جامعة عين شمس - كلية التمريض - قسم تمريض الاطفال
الفهرس
Only 14 pages are availabe for public view

from 282

from 282

Abstract

This study was aimed to assess the effect of supportive care activities on negative emotional feelings of (NS) children.
Hypothesis
Supportive care activities intervention will prevent the negative emotional feelings of (NS) children.
The subject and methods of the current study were discussed under the following Five (5) designs:
I-Research Design
II-Technical Design
III-Operational Design
IV-Administrative Design
V-Statistical Design
I. Research Design
A quasi-experimental design was used to conduct this study.
Study Setting
The study was carried out at Medicine Department of Children’s Hospital affiliated to Ain Shams University Hospitals.
Subject
A purposive sample composed of (50) children were attended to the previously mentioned setting for 50 mothers and their children under the following inclusion criteria:
- Children’s ages from the 5-15 year.
- Confirmed diagnosis of nephrotic syndrome
II. Technical Design
Tools of Data Collection
Data collected through using the following tools pre /post intervention:
I- An Interviewing Questionnaire: It was designed by the researcher after reviewing the related literature, and will be written in simple Arabic language and classified into the following:
1- Characteristics of children such as (age, gender, and ranking)
2- Characteristics of mothers of children such as (educational level, occupational and residence)
3- Mother’s knowledge regarding (NS) concept clinical manifestations, diagnosis, duration of illness, familial history of the disease, causes, and type of treatment related to (NS)
Scoring System
Scores used to evaluate mother’s knowledge regarding (NS). The correct answer was taken score one and for the incorrect answer was taken zero scores. The total knowledge score interpreted as follows:
• Satisfactory knowledge was considering from 60 to 100%
• Unsatisfactory knowledge less than 60%
• Anthropometric measurement adopted by (Stanly, 1975) through a physical assessment on the therapy of scales of measurements. It was including weight, height, head circumference, and arm circumference.
II- Emotion Regulation Checklist: Emotion Regulation Checklist was developed by Danisman et al., (2016) to assess the children’s emotion regulation at the age of 5-15. Emotion Regulation Checklist administered to teachers, school counselors, and mothers to children’s emotion regulation. The Checklist consists of (24 items) the scale included two subscales:
• Liability/Negativity dimension (16 items)
• Emotion Regulation dimension (8 items)
Scoring System
Scoring system was done using four points Liker scale ranging from Zero to 3respectively as (0) Never; (1) Sometimes; (2) Often and (3) Almost always. The score of items was summed-up and the total divided by a number of the items, giving a mean score of the part. These scores were converted into a percent score was classified as the following:
• < 60%Negativefeelingsfrom zero < 44
• ≥ 60% Positive feelings from 44 -72
III- Children’s Assessment of Participation and Enjoyment (CAPE) Developed by (King, 2014) it is composed of (55 items) it was designed to examine how children and youth participate in everyday activities outside of their school classes. It measures children’s participation in recreation and leisure activities outside of mandated school activities that can be organized into:
• Recreational activities (13 items)
• Active physical activities (12 items)
• Social activities (10 items)
• Skill-based activities (10 items)
• Self-improvement activities (10 items)
Scoring
Scoring system was done by allocating to each sentence a score (0) for No and (1) Yes. The score of items was summed-up and the total divided by a number of the items, giving a mean score of the part. These scores were converted into a percent score was classified as the following:
• < 60%Not participated in activity from zero < 33
• ≥ 60% Participated in activity from 34 – 55
IV- Multidimensional Scale of Perceived Social Support (MSPSS), Developed by (Dahlem, 2008), it was used to measure perceived social support; it was included (12 items).
Scoring System
Scoring system was done using three points Liker scale ranging from Zero to 2 respectively as (0) Rarely; (1) Sometimes; and (2) Always. The score of items was summed-up and the total divided by a number of the items, giving a mean score of the part. These scores were converted into a percent score was classified as the following:
• < 50% Low perceived social support from zero <12
• 50 %< 75% moderately perceived social support from 12 <18
• ≥ 75% highly perceived social support from 18 - 24
Face and Content Validity
To achieve the criteria of trustworthiness of the tool of data collection in the study, the tools were tested and evaluated for their face and content validity, by a jury group consists of five experts in the pediatric nursing department of Ain Shams University. To ascertain relevance, clarity, and completeness of the tool, experts’ elicited responses that were either agree or disagree for the face and content validity. The items in which 85% or more of the professors have agreed were included in the proposed tool. The required corrections and modifications were done.
Tool Reliability
The reliability of the tools was assessed by measuring their internal consisted of Cronbach’s Alpha coefficient test. It was good.
Preparatory Phase
The researcher reviewed the literature and prepared the data collection tools including the socio-demographic and clinical data parts, as well as children`s emotional negative feelings scale, children’s assessment of participation and enjoyment and multidimensional scale of perceived social support among children having nephrotic syndrome. This was served to develop the study tools for data collection. During this phase, the researcher also visited the selected place to get acquainted with the personnel and the study settings. Development of the tools was under supervisors’ guidance and experts’ opinions were considered.
Ethical Consideration
Approval was obtained from the ethical committee to conduct this study. The researcher explained the study aim in a simple and clear manner to be understood by eligible mothers/ children. Verbal consent was obtained by each participant before collecting any data. Participants were informed about their right to withdraw from the study at any time without giving any reason. Data were considered confidential and not be used outside this study without mother’s approval.
Pilot Study
A pilot study was carried out in the first half of July 2018, before data collection. The pilot study included 10% of the study subject fulfilling the previously mentioned criteria; it was conducted to evaluate the simplicity, practicability, legibility, understandability, feasibility, validity, and reliability of the tool, it was also used to find the possible problems that might face the researcher and interfere with data collection to estimate the time needed to fill in the sheets. According to the results of the pilot study, no modifications were done in the tools. Those who shared in the pilot study were included in the main study sample.
Fieldwork
Once permission was granted to proceed with the study, the researcher visited the study setting and met with mothers/ children having (NS) who fulfilled the inclusion criteria. The purpose of the study was explained to mothers/ children. The researcher started the interview with the mothers/ children individually using the data collection tools. The researcher read, explained the steps of the study and choices were recorded for illiterate mothers, while educated mothers read and full the questionnaire by themselves.
The time consumed to fill out the full questionnaire ranged from 35 to 45 minutes for one questionnaire, each Saturday, Monday, and Thursday from 9:00 am to 12:00 pm in previously mentioned sitting.
IV. Administrative Design
An official letter requesting permission to conduct the study was submitted from the Dean of Faculty of Nursing, Ain Shams University to obtain permission from the general director of children’s hospital affiliated to Ain Shams University Hospitals to collect the data of the study. The agreement of each relative was obtained after explaining the aim and nature of the study
V. Statistical Design
Data collected from the studied sample was revised, coded, and entered using computerized data entry and statistical analysis were fulfilled using the Statistical Package for Social Sciences (SPSS) version 20. Data were presented using descriptive statistics in the form of frequencies, percentages. Categorical data were tested with the Chi-square test (X²) for qualitative variables and independent sample t-test for quantitative variables. Statistical significance was c0nsidered at p-value <0.05.
Results
• Two thirds (64.0%) of the studied children were boys, 32.0% of them their age ranged between 8<10 years old with mean± SD 8.1±1.4.
• One third (40%) of the studied children were fathers age ranged between 35<40 years old with mean± SD 37.1±2.9.
• There were statistically significant differences between the studied mothers regarding their knowledge
• There were statistically significant differences between the studied mothers regarding their knowledge in relation to treatment & precautions of (NS) throughout the pre and post intervention respectively
• There were statistically significant differences between the studied mothers regarding their total knowledge in relation to (NS) throughout the pre and post intervention respectively (p<0.05).
• There were statistically insignificant differences between the studied children regarding their multidimensional scale of perceived social support in relation to get the emotional help & support need from family & can talk about problems with family throughout the pre and post intervention respectively (p>0.05).
• There were statistically significant differences between the studied children regarding their total multidimensional scale of perceived social support throughout the pre and post intervention respectively (p<0.05).
• There were statistically significant differences between the studied children regarding their recreational activities
• There were statistically significant differences between the studied children regarding their social activities
• There were statistically significant differences between the studied children regarding their self-improvement activities
• There were statistically significant differences between the studied children regarding their physical activities
• There were statistically significant differences between the studied children regarding their skill-based activities
• There were statistically significant differences between the studied children regarding their total participation and enjoyment throughout the pre and post intervention respectively (p<0.05).
• There were statistically significant differences between the studied children regarding their emotion liability / negativity dimension
• There were statistically significant differences between the studied children regarding their emotion regulation dimension
• There were statistically significant differences between the studied children regarding their total emotional negative feelings throughout the pre and post intervention respectively (p<0.05).
Conclusion
The result of the present study concluded that supportive care activities as, social support, recreational activities, social activities, self-improvement activities, active physical activities, skill-based Activities intervention prevent the negative emotional feelings of (NS) children, namely, emotion liability, negativity dimension and emotion regulation dimension.
The goal of supportive care is to prevent or treat as early as possible the symptoms of disease, side effects caused by treatment of diseases and psychological, social and spiritual problems related to disease, nurse is a caregiver for child and helps to manage physical needs, prevent illness and treat health conditions, to do this , they need to observe and monitor he children also nursing goals are focus on managing the child’s symptoms, preventing complications, meeting nutritional needs and addressing the emotional needs of the child and family.
Recommendations
In the light of the current study, the following recommendations are suggested:
1- Encourage use of supportive care activities programs periodically for children with (NS) disease and their mothers based upon their actual assessment to help them to prevent the negative emotional feelings of (NS) children.
2- Further studies should be conducted to study risk factors of rapid progression of the negative emotional feelings of (NS) children.
3- Availability of multidisciplinary team of supportive care as well as follow-up out-patient clinic that include pediatric nurses, renal physicians, social workers, dietitian, psychotherapists and physiotherapist to assist children and their families in maintaining near normal life style at highest possible level of emotional feeling.