الفهرس 
IntroductionOnly 14 pages are availabe for public view
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Abstract
Summary his study was aimed to assess factors affecting QoL for children having Autism through assessing the physical functioning, emotional functioning, social and emotional functioning as well as general well being. A purposive sample composed of all available thirty-five children, aged from 6 to 18 years with confirmed diagnosis ASDs and their mothers had been chosen randomly from Autistic and Psychiatric out Patient clinic affiliated to Ain Shams University and Psychiatric out Patient Clinic in Psychiatric Benha hospital.
An initial pilot study was carried out to a group of 10 children suffering from ASDs and their mothers, in order to test the study tool. Accordingly to mission of unneeded and repeated questions, adding missed question was done. The revised final form was used. All the result of pilot study was not included in the sample of the study.
A letter of proposal from the dean of the Faculty of Nursing, Ain Shams University, was presented to Director of Ain Shams University Hospitals and psychiatric Benha hospital. It was addressed to each director of the previously mentioned settings to obtain their approval to conduct the
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study. The research approval was obtained from scientific research ethical committee in Faculty of Nursing at Ain Shams University before starting the study oral approval was obtained from mothers. They assured that the information collected treated confidentially and that it used only for the purpose of the research.
The study was done: as the following, a predesigned questionnaire sheet was used to collect the necessary data; it was composed of 2 main parts:
The first part:
It concerned with characteristic of the child including age, sex, and child ranking physical measurements; and the characteristic of the child’s mother such as age, marital status, level of education and job.
The second part:
It concerned with knowledge of mother about the disease and its management including history of the disease, duration of illness, clinical manifestation, methods of diagnosis and treatment.
Health related quality of life scale was guided by KIDSCREEN group Europe (2006). It consists of tool was modified and adapted, to assess factors affecting quality of life of ASDs children. It included 10 structured
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statement related to physical, psychological, emotion and moods, self perception‟s, parent reaction and home life, peer and social support, school environment , social acceptance/bullying and financial resources(money matters).
The most important findings could be summarized in the following:
(40.0%) children were in the age group 6:9 years (40.0%) children were in the age group 9:12 years.
Both male and female liable to have ASDs but male (85.7%) are liable to ASD more than female (14.3%).
The highest order of child was the first child (48.6)
More than third quarter (82.9%) of the studied children the appearance age of illness was less than 3 years.34.4% of studied children had disease duration of 3 to less than 6 years and another 34.3% had disease duration of 6 to less than 9 years.
The most two common clinical manifestations were repetition of other words (42.9%) and slow language development (42.9%) and resist to change the daily routine (40%).
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The highest received treatment among patients with autism had linguistic treatment (91.4%), followed by behavioral therapy (68.6%), medical treatment (57.1%) while the least treatment was psychological therapy (14.3%).
There were statistical significant difference between children’s sex and QoL domain related to Physical well-being domain, psychological well-being, school environment and financial resources
There was no significant statistical difference between ranking of autistic child and QoL domain related to physical psychological well-being ,moods and emotion, self perception, autonomy, parents relation and home life, school environment and financial resources
There was no significant statistical difference between severity of the disease and QoL parameters.
There was significant statistical difference between cases with and without family history and quality of life related to autonomy, peers and social support, social acceptance and bullying and financial resources.
There no was significant statistical difference between severity of disease and all aspect quality of life as well total quality.
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There was no significant statistical difference between age at discovery of autism and QoL domain, except parents relation and home life domain there was significant statistical.
There was no significant statistical difference relation between cases with and without abnormal growth parameters and QoL parameters except autonomy domain there was significant difference statistically.
There was no significant statistical difference between presence of medical treatment among autistic patients and QoL domain.
There was significant statistical difference between presence of linguistic treatment among autistic patients QoL parameters, physicals psychological, parents relation and home life, and there was highly significant statistical difference between school environment, financial resources and presence of linguistic treatment among autistic patients
There was significant statistical difference between presence of behavioral therapy among autistic patients and QoL parameters psychological well-being and community support and peers. While there was no significant statistical relation between behavioral
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therapy and QoL physical, mood, self perception, autonomy, parents relation and home life, social acceptance and bullying, school environment and financial resources domain.
There was no significant difference between cases with and without psychological treatment and QoL domain. While there was highly significant difference between psychological treatment and QOL domain related to financial resources. Last but not least the study had concluded that there are factors affecting QoL for children with autism such as Physical well-being domain, Autonomy, Parent relations and home life Peer and social support, Social acceptance/bullying, School environment, Financial resources Psychological well-being and autonomy Moods and emotions, Self-perception. There was a relationship between children sex and quality of life domain related to physical, psychological well-being, school environment and financial resources. The study had recommended that assessment of the quality of life for chronic illness is essential part of nursing role and should be added to the routine daily duties