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العنوان
Quality of Life for Children Suffering from chronic Renal Problems/
المؤلف
Hassan, Noha Abd El-Hamid.
هيئة الاعداد
باحث / نـهــا عبد الحـميد حسن
مشرف / زينب فتحى السيد
مشرف / وفـاء السيد عـودة
مشرف / زينب فتحى السيد
تاريخ النشر
2018
عدد الصفحات
224 p. :
اللغة
الإنجليزية
الدرجة
ماجستير
التخصص
طب الأطفال
تاريخ الإجازة
1/1/2018
مكان الإجازة
جامعة عين شمس - كلية التمريض - تمريض الاطفال
الفهرس
Only 14 pages are availabe for public view

from 224

from 224

Abstract

The diagnosis of a child’s chronic kidney disease is a stressful event for parents especially the mother who is considered to be a main caregiver for the child (Arici, 2014).
Parental responses to the diagnosis of their child’s has chronic kidney commonly include disbelief, denial, anger, frustration and confusion. Mothers of the chronic kidney experience stressors which are usually multiple and ongoing as they confront stressors at the time of diagnosis and during the developmental transition. Community health nurses must be aware of the ongoing responses, needs and quality of life of the chronic kidney child and his/her mother (Sharma, 2013).
Aim of Study:
This study aims to assess the quality of life for children suffering from chronic renal problems.
Research Setting:
This study was conducted at both in and out patient departments at pediatric Hospital affiliated to Ain Shams University.
Sampling size and characteristics:
Sample of the study involved 154 children suffering from CKD and caregivers if necessary from both sexes, with ages at 4-18years.
Data Collection:
Data obtained through an interview with the chronic kidney children and their caregivers if necessary through using the following tools:
Data collection gathered through the following research tools: A pre-designed questionnaire (Appendix 3) it was developed by the researcher, after reviewing relevant references and was written in simple Arabic language and it consisted to two parts:
Part I:
A-Concerned with gathering data related to sociodemographic characteristics of the studied children such as: age, gender, level of education, ranking in the family, present health status, duration of illness and frequency of hospital admission.
B-Concerned with gathering data related to demographic characteristics related to the studied parents such as: age, level of education, occupation and type of work.
Part II:
This part was concerned with data related to studied sample knowledge parents and their children (suffering from chronic renal problems) this part subdivided into the following :
Children’s knowledge and their mothers about chronic kidney problems such as definition, causes, clinical manifestation, treatment, nursing care.
Scoring system:
According to answer, a correct response was scored 1 and incorrect zero for each area of knowledge, the scores of the items was summed-up and total divided by number of the items, giving a mean score for the item. Regarding the knowledge of the studied sample, 100 scores were allocated to all items of the questionnaire. Then the answers were checked with a key answer and accordingly the studied sample knowledge were categorized into two levels: satisfactory above (60%) and unsatisfactory below than (60%).
Quality of life inventory scale (Varni et al., 2003): (Appendix, II)
Quality of life scale consists of five items in each report (physical, social, psychological, school functioning and general wellbeing) scores are ranged from (0-4) with zero representing never has problem, with (1) representing almost never has problem and, with (2) representing sometimes has problem and equal, with (3) representing often has a problem and equal, with(4) representing almost always has a problem and equal.
The items of the five scales (Physical functioning, Emotional functioning, Social functioning, School functioning and communication) on the peds QL Generic Scale, for ease of interpretability, items are reversed scored and linearly transformed to a 0-100 scale. So that higher scores indicate better QOL. To reverse score, transform the 0-4 scale to 0-100 as follows: 0 = 100, 1 = 75%, 2=50%, 3=25% and 4 = 0. The QOL for children with chronic kidney disease was classified according to their responses into high (≥75) moderate (50-75%) and low (≤50%).
Pilot Study:-
Pilot study was conducted involving 10% of the studied sample and their mothers to test the feasibility of the tools and the time consumed for filling in the questionnaire and also to test the language clarity of the tools.
Data obtained from the pilot study were analyzed, the part of question related to using the peritoneal dialysis was cancelled duo to there was no peritoneal dialysis for the children and accordingly the necessary pilot study. The completion of tools took about 45 minutes.
Results:
Results of this study showed that:
More than half of studied sample had satisfactory knowledge regarding chronic kidney diseases.
Less than quarter of studied sample confirmed the financial resources affected on their quality of life.
More than half of the studied sample had satisfactory knowledge toward the factors (physical status, psychological status, social status and enviromental) who confirmed its negative effect on their quality of life.
There was a highly statistical significant relation between child rank and total knowledge about quality (p<0.01) and there is no statistical significant difference between child gender and total knowledge.
There was a highly statistical significant relation between mothers age, level of education and their total quality of life (p<0.001).
There was a highly statistical significant difference between studied sample age, sex and quality of life.
There was no statistical significant relation between education of studied sample and quality of life.
There was statistical significant between mother’s occupation and quality of life.
There was a highly statistical significant relation between total knowledge and total quality of life(p<0.001).