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Abstract Nocturnal enuresis, or bedwetting, is a common problem of childhood. It is not a serious medical disorder, but it can be very difficult to live with. Wetting the bed may interfere with child’s socialization and it can lead to significant stress within the family (Bachmann et al., 2010). Bedwetting is the cause of significant psychosocial stress especially in older children (Elbahnasawy & Elnagar., 2015). The aim of the study was to assess QOL for children suffering from enuresis. Study Question 1. What is the effect of enuresis on quality of life of children? 2. What are the factors affecting the quality of life of such children? 3. Is there relation between care givers level of knowledge about enuresis and quality of life of their children? Research Design: A descriptive design was utilized for conducting the study Research Setting: This study was conducted at the Out Patient Clinic of Institute of Psychiatry affiliated to Ain Shams University Hospitals at special days for child clinic ( Saturday & Tuesday) over 6 month’s period. Research Subject: A purposive sample composed of (80) children (48 male & 32 female)and their caregivers (mothers) suffering from enuresis, involving children from both gender, aged (6<12) years. In addition to their caregivers (80) regardless their characteristics. Tools of data collection: Data were collected through using of the following tools: 1) A predesigned interviewing questionnaire (Appendix I): It was developed by the researcher after reviewing the relevant literature and it was written in Arabic Language to suit level of understanding of the studied sample to collect data regarding the following: a) Demographic characteristics about children: (Child’s age, sex, level of education and rank in the family) b) Demographic characteristics about care givers: (Care giver’s age, sex, level of education, occupation, marital status) c) characteristics of housing condition & environment of the child and their school achievement. d) Medical history of children and care givers about: Type of enuresis, number of bed wetting per a week or month, age of child in beginning urination. e) Level of knowledge of the care givers & their enuretic children about enuresis such as: [Definition, etiology, clinical manifestations, management, prevention and care of child with enuresis]. f) Caregivers practice toward their children with enuresis. Details of toilet training & parent’s reaction toward enuresis g) Possible psychological problem caused by enuresis for the child and factors affecting QOL. Questions were in the form of multiple choices. Each question was completed individually. Scoring system for knowledge: The total scoring for the questionnaire was ”100” marks. According to answer. A complete correct answer was scored 2 and incomplete answer was 1 and incorrect answer was scored zero for each area of knowledge, the scores of the items was summed-up. The children answers were categorized into: · Score < 60 referred to unsatisfactory knowledge. · Score 60 – 100 referred to satisfactory knowledge. Quality of life scale (Appendix II): It was adopted from Varni et al., (2008) and used to assess quality of life for children suffering from enuresis by measuring the essential life spheres which includes: physical, emotional, social, and scholastic functioning as well as general well being. The score ranged from (0-2) with zero has always the problem, 1 has sometimes the problem, 2 has never the problem. The scale was formed of 31 statements that were grouped to four domains: 1-Physical domain (8 items) 2-Emotional domains (7 items) 3-Social domains (9 items) 4-School domains (7 items) Scoring system: The total score for the QOL scale was ”62” marks. The children answers were categorized in to: · Score < 50% referred to poor QOL · Score 50% – 75% referred to average QOL · Score 75% – 100% referred to good QOL Content validity and reliability Operational Design: Preparatory Phase In this phase the researcher reviewed the current available related literature using available book, articles, and periodicals magazines to develop the study tools and to get acquainted with the various aspects of the research problem. Exploratory phase: A pilot study was carried out, involving 10% of the expected study sample which total number (80) to test the feasibility of the study in terms of its setting, tools, time needed. The necessary modifications were done as revealed from the pilot study by adding or omitting some items, and then the children and accompanying caregivers who were involved in the pilot study were excluded later from the study subject. Field Work: The actual field work over 6 month’s period stated at the beginning of July (2014) and was completed by the end of December (2014). The researcher was available twice weekly (Tuesday and Saturday) during morning shift from (9am to 12 md) using the previously mentioned study tools at the Out Patient Clinic of Institute of Psychiatry. The researcher started by introducing herself to the children and their caregiver and giving the brief idea about the aim of the study, explaining the purpose of the study. Then verbal consent was obtained from the children’s caregiver to participate in the study. The researcher interviewed with each child and his care giver individually at available time within 25-30 minutes to complete the questionnaire sheet. Result: The most important findings obtained from the present study can be summarized as the following: · Three fifth (60.0%) of the studied children were males, around half of enuretic children (52.5%) were in the age group 10-12 years. · The most of them 40.0% were in preparatory level of education. And nearly half (47.5%) of them ranked as the first child. · The majority 85.0% of studied children were diagnosed as primary enuresis, and more than half of them (57.5%) belonging to big family size as their number of family member ranged from 5-7 member. · The majorities of the studied children were irregular in their school attendance and reported poor scholastic achievement about (70.0%) were fail in school due to enuresis.. · Around Three fifth (65.5%) of caregiver of enuretic children were in the age group 30 < 40 years and nearly half (45.0%) of them were read & write in their educational level, more than three quarter (82.5%) not working. About third of them had family troubles as being divorced. · The majority of the studied sample (97.0%) were lived in shared house, (78.0%) were had separated bathroom, while more than three quarters (82.5%) were had adequate lighting in bathroom, also were running water& sewage. · More than half of them (57.5%) were had nocturnal enuresis, while about quarter of them (25.0%) were had Diurnal enuresis, and only (17.5%) were had both. · Regarding the possible complication of enuresis on child, around half of them had sleep disturbances, nearly half of them had emotional disturbances and more than half of children had social disturbances. · More than half of caregivers (55.0%) were physically punish their children for their bedwetting, (20.0%) punish both (physically & psychologically). · Regarding the reaction & practice of the family toward bedwetting of their children and receiving medication for enuretic children the present study showed that, (42.0%) of families used the herbal therapy, (77%) using beating &intensity, while (45%) ask doctor advice. · Regarding the child’s self concept, satisfying, self- esteem it was clear from the present study that the great majority of There was no statistical significant relation (P= > 0.05) between the child’s gender, the education of their caregivers and the school functioning domain of quality of life. · There was no statistical significant relation (P= > 0.05) between the child’s gender and the social domain of quality of life. · There was statistical significant relation(P= < 0.050) between the child’s age, gender and total quality of life, while There was highly statistical significant relation between the child’s diagnosis and total quality of life(P=< 0.001). · There was no statistical significant relation (P= > 0.05) between caregiver’s work and their total knowledge about enuresis. · There was statistical significant relation (P= < 0.050) between knowledge of the studied sample and their total quality of life. · There was highly significant relation between Total QOL of children and Practice of caregivers with positive correlation (P=< 0.001). · There was no statistical significant relation (P= > 0.05) between family size of the studied sample and their total quality of life. |