الفهرس 
IntroductionOnly 14 pages are availabe for public view
 |  | from | 16 |  |  |
| | | from | 16 | | |
Abstract
Nursing intervention to reduce burden of caregivers of
children with epilepsy.
Epilepsy is a group of long-term neurological disorders characterized
by epileptic seizures. (Panayiotopoulos, 2011). About 1% of people
worldwide (65 million) have epilepsy and nearly 80% of cases occur in
developing countries (Thurman, Beghi, Begley, Berg, Buchhalter et al.,
2011). In the developed world, onset of new cases occurs most frequently
in infants and the elderly; in the developing world, this is in older children
and young adults, due to differences in the frequency of the underlying
causes (Brodie, Elder & Kwan, 2009).
Epilepsy has a great impact on the lives of patients and their
caregivers. Its impact can be characterized in terms of social repercussions,
such as isolation, prejudice, and unemployment, or in terms of emotional
influences, personal relationship difficulties, negative self-image, and low
self-esteem (Abdulkareem, Nuhu &Akinsola, 2009). Coping with the care
of a child with a chronic health condition occurs as parents must
cognitively and behaviorally manage the stress of comprehending the
medical condition, providing appropriate care to meet the needs of the child
and family (Jaser, Fear, Reeslund, Champion, Reising et al., 2008).
Nurses have a responsibility to educate individuals with epilepsy and
their families, and are involved in the assessment of whether or not
management and treatment interventions are successful (Epilepsy
Foundation, 2009). The present study aims to evaluate the effectiveness of
nursing intervention on reducing feeling of burden among caregivers of
children with epilepsy. The study was conducted on eighty (80) caregivers
at the out patient clinic of health insurance institution in Shebin El-Kom
district, Menoufia Governorate. The subject was a convenience sample of
80 caregivers for children with epilepsy. The time of collection starts from
last of April to November
Data was collected through the following:
I- epileptic children’ caregivers’ questionnaire (A constructed interviewing
questionnaire) was developed and utilized by the researcher, it was
consisted of three parts:
1- Sociodemographic data for child e.g. (age group, sex, level of
education, child order within family, place of residence) and for
caregiver (relationship to the child, sex, level of education,
marital status, Job status, nearly monthly income, number of
family members).
2- Medical history for the child including disease duration in years,
comorbidities, type, duration and time of epileptic fits) and
medical history for caregiver including (presence of chronic
disease, commitment of taking medication and causes of not
having and presence of chronic diseases for other family
members).
3- Family caregiver’s knowledge, practices and opinions regarding
epilepsy definition, causes, manifestation, precipitating factors,
side effects of epileptic drugs, safety precaution to protect the
child inside and outside the home.
II- Modified version of Zarit burden-interviewing questionnaire (ZBI) for
caregivers developed by Zarit, (1986) used to measure to what extent the
family caregiver have physical, social, and psychological burden because
of caring their children with epilepsy.
III- Coping Health Inventory for Parents (CHIP) developed by McCubbin,
McCubbin, Nevin, & Cauble, (1981) was used to measure parental
coping strategies. This validated instrument was designed to assess
parents’ appraisal of behaviors currently in use to manage family life
when they have a seriously ill or chronically ill child.
The main finding of the study revealed that
There were statistical significant differences between pre-post
nursing interventions regarding to studied caregivers’ knowledge
about epilepsy except the point triggers of epilepsy.
There were statistical significant differences between pre posttest
nursing interventions regarding to studied caregivers’ attitudes
toward epilepsy.
There were statistical significant differences between pre posttest
nursing interventions regarding to studied caregivers’ practices about
epilepsy except the point of allowing epileptic child to go for
journeys.
There were statistical significant differences between pre- posttest
nursing interventions regarding studied caregivers’ types of burden.
Also, there was statistical significance difference between pre
posttest nursing intervention regarding studied caregivers’ total score
of feeling of burden.
There were statistical significant differences between pre- posttest
nursing intervention regarding studied caregivers’ types of coping.
Also, there was statistical significance difference regarding total
score of coping at pre- post nursing intervention
There were statistical significant differences between studied
caregivers’ sociodemographic characteristics and level of burden pre
nursing intervention regarding to level of education and income.
There was statistical significant difference between studied
caregivers’ sociodemographic characteristics and level of coping pre
nursing intervention regarding level of education, job status and
income. Also, there was statistical significant difference between
place of residence and marital status and level of coping post-nursing
intervention.
There were statistical negative correlation between studied
caregivers’ knowledge, practice s and attitudes and level of burden
pre nursing intervention. Also, there were statistical negative
correlation between studied caregivers’ knowledge and attitudes and
level of burden post nursing intervention.
There was statistical positive correlation between studied caregivers’
knowledge and level of coping at both pre and post nursing
intervention. Also , there were positive correlations between
practices and attitudes and level of coping pre nursing intervention.
Based on the results of the current study it can be concluded that:
The results of the present study revealed that, nursing intervention
was effective in improving caregivers’ knowledge, practices and opinions
among caregivers for children with epilepsy.
In addition, nursing intervention was effective to reduce feeling of
burden of caregivers; also, health education for people with epilepsy and
their families is critical around the time of diagnosis; through the first year.
Finally, the current study highlights the positive impact of nursing
intervention on raising coping abilities among caregivers of children with
epilepsy to manage their stress related to provision of care.
In the light of the present study findings, it can be recommended
that:
Recommendation for caregivers:
- Caregivers need information and strategies that can help them come to
terms with having a child with epilepsy so that they, in turn, can help
their children cope more effectively.
- Caregiver counseling and education, evaluation and treatment of
evolving caregiver psychopathology, and individualized and/or group
multidisciplinary interventions to provide physical, emotional, social,
and financial support to the caregiver may ameliorate caregiver burden.
- Epilepsy-specific self-management programs should be developed,
tested and replicated. High-quality, validated epilepsy education
programs can provide individuals, families, and caregivers with accurate
information and education to build the skills needed to achieve optimal
self-management.
Recommendation for mass media and research:
- Exploring new opportunities for improving education, such as a
centralized web resource, radio and television media in order to connect
people with reliable sources of information, decrease stigma of disease
and correct misconceptions about disease.
- Make hot line service in order to answering any question related to
disease and for emergency cases.
- Replication of the research study on further setting and sample and
additional research and time needs to be devoted for evaluating
available educational resources and tools.