الفهرس 
ACKNOWLEDGEMENTيوجد فقط 14 صفحة متاحة للعرض العام
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المستخلص
Background: end stage renal disease is a chronic clinical condition which is an irreversible loss of
endogenous renal function of a degree sufficient to render the child permanently dependent on renal
replacement therapy as hemodialysis, peritoneal dialysis or transplantation. Those children require a
caregiver to assume major responsibility for their treatment. The aim of this study was to assess
knowledge, attitudes and practices of caregivers of children with End Stage Renal Disease on
hemodialysis. An exploratory research design was utilized in this study. Setting: The study was
conducted in pediatric hemodialysis unit which is belonging to outpatient clinics of Abu El Rish
Pediatric University hospital. A convenient sample of 54 caregivers and their (54) children with ESRD
on hemodialysis were recruited for the study. Structured interview questionnaire was developed by the
investigator and used to achieve the purpose of this study which consisted of 5 tools. The 1st tool: family
caregivers’ sociodemographic data, 2nd: caregivers’ knowledge, the 3rd: caregivers’ practices, 4th: 5 levels
likert scale for caregivers’ attitudes, and 5th: child assessment data sheet. The result of this study showed
that more than three quarters of caregivers were females, married and not working. More than third of
caregivers were illiterate, more than half from rural regions. More than three fifths of each of total levels
of knowledge, practice and attitude were satisfactory (63.7%, 67.6% and 66.7%) respectively. More than
three quarters of caregivers’ source of knowledge was from physician. There were positive statistically
significant relations between total knowledge, income of caregivers and type of family, p=0.03 and 0.02
respectively. A positive relation was found between total practice and caregivers’ gender, p=0.04, while
a highly positive statistically significant relation was found between total practice of caregivers and type
of family, p=0.01. As there were highly positive statistically significant relations between caregiver’s
knowledge, child’s pulse, skin integrity, presence of pulse and thrill at fistula site, p=0.005, 0.0001,
0.002 and 0.0001 respectively. A positive relation was found between caregivers’ practice and child’s
collateral vein distension, p=0.0001, while there were no statistical significant correlations between
caregivers’ total scores of knowledge and practice, p=0.065, knowledge and attitudes, p=0.712 and
attitudes and practices, p=0.386. This study concluded that caregivers are the cornerstone to manage
their children’s long-term condition throughout the trajectory of End stage renal disease and
Hemodialysis. Recommendation: Health education programs should be developed for caregivers and
their grown up children on hemodialysis to improve their level of knowledge about causes of renal
failure and dietary regimen, their practices regarding compliance with dietary regimen and care of fistula
site as well as their attitudes to correct misconception about hemodialysis to adapt with the disease.